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A Question For You All. My Neurologist Strongly Suggests That I Avoid Other People. Avoid Dining Out, Shopping, Church, And Other Places.
I assume the azathioprine is the reason, but what does your doctors tell you? Our immunity systems are seriously weakened so I see the reasoning, but... I'm not much of a hermit, but learning to be one.
You guys are in a tough situation for sure. I feel for you and the frustration. This is a tough disease with no real answers. What I have found that helps is to exercise moderately every other day. I… read more
I Would Be Interested To Hear People’s Experiences With Imuron And If Your Taking An Antibiotic With It As Well?
My MG converted from ocular to Generalized so I had to switch from a neuro-opthalmologist to a neurologist. She wants to wean me off prednisone and move me to Imuron and and Bactrim. Curious about experiences with these drugs, effects and side effects.
I have been on Imuron for almost 2 years also 2 years on Prednisone. I believe it is helping with my muscles strength. I am also taking Vgvgart Hytrulo and having many good days. I was having… read more
Has Anyone Had Ankle Cramps From Aazthrioprine? I Woke Up In The Middle Of The Night With Really Bad Cramps In My Ankles!
Both types of MG
I get ankle and calf cramps at night also when it happens I get up and take leg cramp pills. I try to drink lots of water
Is It Normal For A Bad Taste In Mouth After Taking Pyridostigmine And Azathioprine. Nothing Taste Right. If So How Long Will It Last.
A bad taste in the mouth is not listed as a common side effect for either pyridostigmine (Mestinon) or azathioprine. However, both medications can cause gastrointestinal side effects like nausea and… read more
My Vision Is Always Blurred. This Presence A Problem With My Reading Glasses. I Go From 175-300. Anyone Have This Problem Or A Solution?
I Know You Can't Take Magnesium Wit MG But Someone Mentioned Potassium Helps With Spasms. Anyone Know Anything About This Good Bad ?
Thanks Bill. See neurologist weds. I'll see what she says .I hope your right been really weak and tired
I’ve Been Getting A Lot Of Pain In The Top Of My Foot And Cramping In Lower Calf Lately Don’t Know If It Mg Or Something Else Gong On
I get the same cramps, almost exclusively at night. I'm pretty sure they are MG related.
Why Would Someone Only Take Mestinon When MG Is Caused By Antibodies Attacking Our Nerves?? I Don't Get It. I'm 15 Mg Prednisone And 1000 Ce
Pyridostigmine helps with neuromuscular communication prednisone is an immunosuppressant against antibodies. Not familiar with the other medication. I also take Azathioprine, another… read more
Does The Effects Of Pyridortigmine Ever Wear Off
My wife, diagnosed 2024, takes Pyrid…..she has been feeling about 30 % for about a month. Was doing much better. I know everything is not related to MG, but she is going down hill. I have no answers… read more
At The Moment I Appear To Be Affected Most By The Medications: 1 To 2 Hours After Taking Prednisone And Azathioprine Fist Thin In The Morni
I experience confusion and fuzzy-headedness that last 4 or 5 hours or so. I also get severe cramps if I take too much pyridostigmine. How can I reduce the confusion and fuzzy- headedness?
The taper was .5 mg every week so it took 5 or 6 weeks. I felt the withdrawal as the weeks went on. Energy levels went down and foggy brain in the mornings for a couple hours.
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