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My PCP Just Told Me That She Heard "crackles" In My Lungs, Yet My Chest X-ray Came Back Negative. Anyone Else With MG Have This "problem?"
Dear Sheila, Your symptoms sound very painful. Prayers that your CT scan comes back negative with nothing serious showing. Hopefully your doctor will have some answers for you. Merry Christmas to… read more
Has Anyone Ever Had The SFEMG Test Done?
Did you get your results Cynthia? I hope you are doing well tonight.
Severe MG Flare...
Maybe 3 - 4 times in the past year I had a severe flare. No breathing issues, just the worse fatigue ever. Which is saying a LOT since normal fatigue is difficult. In each case I become so fatigued I can't hardly function and must lay down and put my CPAP on. I quickly fall asleep for an hour or two when I wake up I almost feel drugged. With a foggy brain and little memory of the past several hours. I slowly come out of the brain fog and then just feel the normal fatigue the rest of the day.
Good to hear you are better now Mr. Bill. Prayers do work! Cindy, praying you do well for a very long time.
Cheers, Bill
Why Do I Get A Headache After Taking The Mestiton?
I do. I get headaches also. Not sure why. I just figured it had to be a side effect.
Where Can I Get A Medical ID Bracelet For MG?
Traveling with a medical ID bracelet is highly recommended for individuals with myasthenia gravis. You can find medical ID bracelets through various online retailers or pharmacies. Additionally, the… read more
Autocorrect Changed My Question - Any Complications Getting A PROLIA Injection The Day Before IVIg?
Are There Any Complications Getting A Prolix Shot Right Before IVIg Therapy?
Has Anybody Tried Vyvgaurd
I have been on Vyvart iv. I am now on the injection. Once a week 3 week break in conjunction with Mestinon. I feel iv works better than injection. Anyone else?
Dealing With MG For 2 Years On Meds I’m Better But Still Have Eye,chewing,speech And Swallowing Problems Will They Ever Go Away
This is sad but so true , meds brings on their own side effects unfortunately❤
I Have Been Diagnosed With MG Since 2017. Just Received An Additional Diagnosis Of Congestive Heart Failure. Anyone Have Same Experience?
I was hospitalized for 10 days with the CHF. Released and 6 days later re-admited for an MG Crisis. Had to go to Inpatient Rehabilitation and now home. A very difficult time.
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