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Questions & Answers

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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Are You Frustrated With Finding Effective Treatments For Myasthenia Gravis?

By A MGteam Member 34 answers
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What’s One Thing About Myasthenia Gravis That People Rarely Discuss But Should?

By A MGteam Member 27 answers
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How Do Beverages With Caffeine Affect Your MG?

By A MGteam Member 40 answers
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Which Myasthenia Gravis Symptom Surprised You The Most?

By A MGteam Member 96 answers
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600 questions

Does Anyone Have Prisms Ground In Their Glasses For Double Vision? Also, Have You Tried The 3M Fresnel Prisms That Stick On To Your Glasses?

A MGteam Member asked a question 💭
Gainesville, FL

I've been struggling with a lot of double vision and I'm an avid reader. I go to my ophthalmologist on February 6th, and I wanted to ask if anyone has tried the stick on prism prescription that 3M makes?

A MGteam Member

I currently have the stick on prism and as soon as the temperature rises a bit (it was -2° out and only went up to 5°
) I will get new glasses with the 10 prism ground in. I find my eyes are not… read more

11 hours ago

How Can I Lose Weight When They Have Me Taking Prednisone? It Makes Me Gain Weight.

A MGteam Member asked a question 💭
Charleston, SC
A MGteam Member

I am struggling with this too. Dr's do not have helpful answers either just that it's because your on steroids. I would be careful about fiber if you are already having bathroom side effects as that… read more

10 hours ago

Does Anyone Been Diagnosed With Congenital MG

A MGteam Member asked a question 💭
Frankfort, IL

Has Anyone Tried IVIG Octagam? I’m Supposed To Start This Week!

A MGteam Member asked a question 💭
Utah
A MGteam Member

You're welcome. Good luck with your infusions.

24 hours ago

So The Wife's Been Sick With Cold, Flu Like Symptoms For 10 Days And I Woke 4 Days Ago With Same Symptoms. For What It's Worth Covid Tests

A MGteam Member asked a question 💭
Belleville, MI

Negative. All cough syrup has anti cloegenic ingredients which are contraindicated for MG. Any ideas to get rid of this phlegm so I can breathe??

A MGteam Member

Try drinking hot tea with honey or take a teaspoon of honey , pineapple juice , it helps thin mucus so you can cough it up , my Neurologist said I could drink Mullen tea does the same thing.

January 9

With MG My Muscles In My Hands Constrict Pulling My Fingers Inward. Never Spontaneously Only When Using My Hands. Is This A Symptom Of MG?

A MGteam Member asked a question 💭
Franklin, TN
A MGteam Member

Oh thank you for asking this! I get terrible hand and foot cramps lately. I didn’t associate it with MG.

6 days ago

I Am Seronegative MG And Have Fatigue Still After Christmas Activities. Is There Other Medication Besides Mestinon For Me?

A MGteam Member asked a question 💭
Houston, TX
A MGteam Member

Thank you for mentioning B12 shots. I was on them a couple of years ago and will mention them to my doctor.

1 day ago

Has Anyone Had Bowel Incontinence Related To MG?

A MGteam Member asked a question 💭
Broussard, LA
A MGteam Member

Thank you.

January 6

Could My MG Have Caused My Recent Diagnosis Of A-fib?

A MGteam Member asked a question 💭
Connellsville, PA
A MGteam Member

Myasthenia gravis (MG) can indirectly contribute to heart issues, including atrial fibrillation (A-fib), especially if it affects the cardiac muscles. MG-related heart complications, such as… read more

January 4

I Have MG With Mostly Symptoms Of Fatigue. Also Numb Lips. Anyone Else Have Numb Lips With MG?

A MGteam Member asked a question 💭
Martinez, CA
A MGteam Member

Numb lips can occur in myasthenia gravis (MG), though it’s less common. MG often causes muscle weakness, which can affect facial muscles, including those around the mouth. Some MGteam members have… read more

January 4
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