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MG And Your BP. Do Any Of You MG People Deal With Wildly Fluctuating Blood Pressures In A 24-hour Period? Is This A Normal Symptom?

A MGteam Member asked a question 💭
Clarkdale, AZ
October 16, 2024
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A MGteam Member

I am on Amilodipine 2.5 mg and doing quite well.
It seems to control my BP and keep it under control.
God Bless You.
May 2025 bring you Peace , Prosperity, Happiness and many more.
Happy New Year

January 1
A MGteam Member

Hi DianeGreg, POTS stand for Postural Orthostatic Tachycardia Syndrome. It can cause disregulation in HR & BP with changes in standing, sitting, laying down. If you do a Google search you can find more info, but some symptoms can be, fatigue, muscle weakness, slurred speach, difficulty swallowing... all things by daughter also gets with MG. She absolutely has MG, but sometimes these symptoms are really bad in the morning, which isn't typical of MG but IS typical for POTS. We believe the two conditions have been triggering each other and making things more difficult to treat.

November 6, 2024
A MGteam Member

My long term memory takes breaks. So I try to keep my memory sharp with puzzle games on my phone. I remember my mom loved search a word books. We would buy her 5 or 6 books a month.

November 5, 2024
A MGteam Member

Hi AManey, thanks so much for your nice note. Refresh my memory if you would please. What does POTS stand for. I used to know, but can't for the life of me, remember what it is now. My memory is shot now too. I have a terrible time trying to remember words.......not just names and dates, but words!!! Very alarming!!!! I guess that's part of MG as well. 🤤

November 5, 2024
A MGteam Member

My daughter with MG was recently diagnosed with POTS. We believe that's causing her BP and Heart Rate disregulation. POTS & MG actually have similarities in both symptoms and treatments. Her POTS symptoms definitely are worse when she's having an MG flare as well. They seem to trigger each other. Maybe something to look into for you?

November 5, 2024

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