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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Would A Thymectomy Relieve My Symptoms? How Long Is The Process? What Would Be My Possible Prognosis?

A MGteam Member asked a question 💭
Hammond, IN

I've been diagnosed since 2013, with ocular MG. Not much info back then and all my docs were absolutely perplexed with me. I was put on mestinon idk what the dosage was back then. I followed all the doctors advice. My neurologist didn't have this info back then. I couldn't find much at all. I was told so many things that it became water in a bucket. All I kept was there was no cure. And you have a tumor in your thyroid. Docs back then said your thyroid shouldn't be active. That's it. I just had… read more

October 13
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7 Facts About Myasthenia Gravis You Should Know Read Article...
A MGteam Member

I'm so sorry you're having so much trouble, Johanna! I have the same diagnosis and symptoms, so I'm interested in what answers you get from doctors about the best way to deal with all of it.
Prayers for you and all of us!
❤️ wm

October 14
A MGteam Member

Please note the difference between thyroid gland and thymus gland. Two entirely different things. If you have a thyroid tumor, it may not be cause for alarm.It must be checked and followed annually (I speak from experience - I have a tumor that grows but it is benign / no cancer but we do keep our eye on it!) If there is trouble with the thymus, then have the doctor's look into that thoroughly as it is a definite tie to MG.

October 13
A MGteam Member

Hi Johanna, I'm so sorry you're going through such a trial and struggle with this stuff. It seems like it's different for each one of us. You mentioned bruising on your legs Johanna. Do you get muscle cramps in your legs at night? They are just excruciating. I'm glad there is so much more information out there available to us all nowadays and I'm glad you're staying on top of it. It helps to understand what is going on inside our bodies. You're in my thoughts and prayers sister. Hope you feel much better soon and that your doctors will work with you to keep you informed of the latest developments and medications. Thanks so much for sharing your story and symptoms with us. 💖

October 13
A MGteam Member

I'm glad your so informed so you can be your own advocate and help the doctors help you , they are so much more knowledgeable now about MG , and to me a person is a person period , god made us all and loves us all, praying for you my friend that you get good medical treatment and answers.

October 13
A MGteam Member

Given your detailed history and current symptoms, here are some insights based on my knowledge base:

Thymectomy and Its Benefits
- Thymectomy: This is the surgical removal of the thymus gland. It is often recommended for people with myasthenia gravis (MG) to improve muscle weakness, reduce medication needs, and Show Full Answer

Given your detailed history and current symptoms, here are some insights based on my knowledge base:

Thymectomy and Its Benefits:
- Thymectomy: This is the surgical removal of the thymus gland. It is often recommended for people with myasthenia gravis (MG) to improve muscle weakness, reduce medication needs, and potentially achieve remission.
- Effectiveness: Most people see benefits within a year, but it may take years to see the full effects. Some people achieve permanent remission where all symptoms disappear without medication.

Suitability for Thymectomy:
- Age Factor: Thymectomy is generally recommended for people under 60. Since you are 64, it might not be the first option considered.
- Ocular MG: Thymectomy is not typically recommended for those with ocular MG, which primarily affects the eye muscles.

Potential Prognosis:
- Symptom Improvement: If a thymectomy is performed, you might see an improvement in symptoms over time. However, the process can be gradual.
- Medication Adjustment: Post-surgery, your doctor may adjust your medication doses and types over time.
- Complications: Potential risks include myasthenic crisis, injury to the heart, nerves, or blood vessels, collapsed lung, and pneumonia.

Current Symptoms and Management:
- Symptoms: Your symptoms like droopy eyes, light sensitivity, trouble swallowing, and muscle weakness are consistent with MG.
- Medication: Continuing with medications like Mestinon (pyridostigmine) can help manage symptoms. Your doctor might also consider other treatments based on your current condition.

Next Steps:
- Consultation: Discuss your symptoms and history with your neurologist. Share the information you've gathered to explore if a thymectomy or other treatments might be beneficial.
- Stay Informed: Continue to stay informed and advocate for your health. Your proactive approach is crucial in managing MG.

Staying hopeful and informed is key. Best wishes on your journey to better health! 😎🙏🏿❤

October 13

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