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Currently Doing Vyvgart And Condsidering Switching To Ultomirus; Has Anyone Had Better Results With Either One ?
Has Anyone Been On Ultomiris Infusion And What Kind Of Results Have You Had.
Has Anyone Had To Stop Taking VYVGART Due To It Not Working On You?
No all is well
If Anyone Is On Vyvgart Or Ultomiris Can You Please Share Experiences Wit Us.
had 2nd infusion. experienced pain going from behind my ears down my jawline. took benadryl and it helped. vision got really off.
Anyone Using Ultromiris. I Am On Soliris Every Two Weeks. Ultro Is Every 8. Are You Having Any Symptoms Returning Before The 8 Weeks Are Up
I am on ultro it has worked great Vyvgart did not work for me.
Are Legs Affected By Mg
Progressive weakness of my legs & hip & shoulder girdle as the day wears on, especially in the afternoon oad after light gardening or housework. My thighs have begun to feel weakness and tenderness… read more
Has Anyone Shifted From Cellcept To One Of The New Biologics? And, If So, What Was Your Experience.
I had acute onset of MG with serious exacerbations (on ventilator for a week) almost 4 years ago. After multiple rounds of plasma pheresis, steroids, etc., I was able to move to 2000 mg Cellcept daily as only meds and did quite well. Recently, however, I have noticed a return in fatigue and weakness and will be seeing my neurologist next week to consider altering medication. Thus my question about shift from Cellcept to one of the new biologics. Thank you.
Switching from Cellcept (mycophenolate mofetil) to a biologic medication for myasthenia gravis (MG) is a significant decision that should be made in consultation with your neurologist. Here are some… read more
Thoughts On Getting The COVID Vaccine? Anyone Have Issues With Receiving It?
There are some studies that point a correlation between the Covid vaccine and MG if symptoms show up within 4 weeks of receiving the vaccine. Mine started 3 weeks after getting the vaccine.
Because I'm on Ultomiris now and my resistance could be lowered, I'm not getting any more Covid shots.
Is The Infusion Treatment Ultomiris Better Than Mycophenolate? How Serious Is Meningitis Threat?
Are Any Of You On Ultomiris? My Insurance Company Would Only Approve This Medication. If You Are On It, How Is It Working For You?
It’s it terrible that we use insurance companies “money management” , not real medicine to treat us
I’ve been go fighting insurance companies for 52 years, that’s when my baby was diagnosis… read more
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