About MGteam
Powered By
Has Anyone Been On Ultomiris Infusion And What Kind Of Results Have You Had.
Has Anyone Had To Stop Taking VYVGART Due To It Not Working On You?
No all is well
Anyone Using Ultromiris. I Am On Soliris Every Two Weeks. Ultro Is Every 8. Are You Having Any Symptoms Returning Before The 8 Weeks Are Up
I am on ultro it has worked great Vyvgart did not work for me.
Are Legs Affected By Mg
Progressive weakness of my legs & hip & shoulder girdle as the day wears on, especially in the afternoon oad after light gardening or housework. My thighs have begun to feel weakness and tenderness… read more
Thoughts On Getting The COVID Vaccine? Anyone Have Issues With Receiving It?
There are some studies that point a correlation between the Covid vaccine and MG if symptoms show up within 4 weeks of receiving the vaccine. Mine started 3 weeks after getting the vaccine.
Because I'm on Ultomiris now and my resistance could be lowered, I'm not getting any more Covid shots.
If Anyone Is On Vyvgart Or Ultomiris Can You Please Share Experiences Wit Us.
had 2nd infusion. experienced pain going from behind my ears down my jawline. took benadryl and it helped. vision got really off.
Is The Infusion Treatment Ultomiris Better Than Mycophenolate? How Serious Is Meningitis Threat?
Are Any Of You On Ultomiris? My Insurance Company Would Only Approve This Medication. If You Are On It, How Is It Working For You?
It’s it terrible that we use insurance companies “money management” , not real medicine to treat us
I’ve been go fighting insurance companies for 52 years, that’s when my baby was diagnosis… read more
Is There Any Kind Of Remedy For The Ocular Mg?MG?? I Take Mestinon And Infusions With Ultomiris And Still Get Double Vision During The Day
I have Generalized MG but I had bad double vision and I started on IVIG infusions every three weeks a little over a year ago and It stops my double vision. Sometimes the day before my infusion I have… read more
My Doctor Has Got Me On IVIG Infusions And They Asked Me Do I Think They Are Working I Don't Know How To Answer That
I had anaphylaxis to ivig. So hospital rapid response team and Eli pen to rescue. Then ICU and plasmapheresis to rescue. Did help but 6 weeks after I. Needed hospital and steroid care. I got told it… read more
