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Refractory GMG: Been On Vyvgart Since March '24; No Appreciable Results. What To Do Next?

A MGteam Member asked a question 💭
Vero Beach, FL
January 7
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A MGteam Member

Ultomiris lasts longer - 8 weeks instead of soliris 4. They work by binding to and stopping the c5 complement protein. You will feel better than on Vyvgart.

3 days ago
A MGteam Member

Thanks for your reply. Is Ultomiris supposed to be better than Soliris? Does it work differently?

5 days ago
A MGteam Member

There are other infusions. Ultomiris infusions work differently than what you have tried. And you only have to take it every 8 weeks. Soliris is its predecessor and was taken as a monthly infusion.

And one of the most basic medicines is prednisone. But if you can avoid it, it is good as it prednisone has many side effects.

7 days ago
A MGteam Member

I'm refractory. IVIG, plasmapherisis, Mestinon don't work. Had one shot of Rituximab without significant results, before Vyvgart. Not a happy camper.

January 8
A MGteam Member

If Vyvgart hasn't provided noticeable improvement for your refractory generalized myasthenia gravis (gMG) since March 2024, it may be time to discuss alternative treatments with your doctor. Options include other biologics like Ultomiris or Rystiggo, intravenous therapies like IVIG or plasmapheresis, or even surgical Show Full Answer

If Vyvgart hasn't provided noticeable improvement for your refractory generalized myasthenia gravis (gMG) since March 2024, it may be time to discuss alternative treatments with your doctor. Options include other biologics like Ultomiris or Rystiggo, intravenous therapies like IVIG or plasmapheresis, or even surgical options like thymectomy if applicable. Each has unique benefits and risks, so a tailored approach is essential. Learn more at url: https://www.MGteam.com/resources/treatment-opti....

January 7

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