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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Occular MG

A MGteam Member asked a question 💭
Utah

Hey All, thanks for being patient with me as I journey through this change the past couple of months. As a brief reminder, my drs didn’t agree 100% with my diagnosis.

I could not move my left eye for approx 2 months. Major double vision and droopy eye. Just after Christmas I started Prednisone. My double vision started to get better and now is pretty much gone and I have my eye movement back
Here is my question. Last week I started getting major pain on the right side of my eye and it’s… read more

6 days ago
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A MGteam Member

I cannot tolerate Predisone at all. My doctor has me on Cellcept for immuno-supression.

3 days ago
A MGteam Member

It sounds like you're navigating a challenging time with ocular MG, but it's great to hear your double vision and eye movement have improved with prednisone. Regarding the pain, while nerve pain isn't a typical symptom of ocular MG, it could be related to other factors, such as medication side effects or strain from Show Full Answer

It sounds like you're navigating a challenging time with ocular MG, but it's great to hear your double vision and eye movement have improved with prednisone. Regarding the pain, while nerve pain isn't a typical symptom of ocular MG, it could be related to other factors, such as medication side effects or strain from previous eye misalignment. Prednisone can help with inflammation, but persistent or worsening pain might require further evaluation.

If the pain continues despite the nerve medication and prednisone, your doctor might consider other treatments, such as IV immunoglobulin (IVIG) or plasmapheresis, especially if they suspect worsening MG symptoms or another underlying issue. It's essential to communicate openly with your healthcare team about the severity and impact of the pain. Regular follow-ups and possibly consulting an ophthalmologist or neurologist specializing in MG could provide more clarity.

6 days ago
A MGteam Member

Over the past year, I have experienced eye pain on the right side of my right eye several times. This pain tends to occur just before I notice a change in my vision. I prefer to avoid using prednisone if possible; my previous experience with it back in 1998 for a separate autoimmune illness was quite unpleasant due to the side effects. I have taken pyridostigmine but have seen minimal results. However, I have had excellent outcomes with IVIG treatments.

3 days ago
A MGteam Member

Thanks everyone! I appreciate it!

5 days ago
A MGteam Member

I have eye pain. But the steroids are causing other problems. So I'm hoping to find something that won't make me sicker.

5 days ago

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