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Can The Medications I Take For My Other Diagnosis Mask Or Give False Results To Diagnosing MG?

A MGteam Member asked a question 💭

I take weekly shots of Methotrexate, muscle relaxers to stop cramps, diuretics, and thyroid Rx
Very frustrated with doctors. They give me conflicting opinions
Ready to change doctors..
These were the first symptoms I realized something was wrong. Eye droop, severe leg cramps, muscle weakness in arms and legs, unsteady gait all these symptoms have been treated with medications but only help a little bit most of the time, but sometimes I do feel better.
6 months before getting sick I had… read more

August 27
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A MGteam Member

There is simple inexpensive test for MG that your pcp can order: AChR

September 1
A MGteam Member

There is a simple, inexpensive blood test for MG that your PCP can order: AChR, takes a couple of weeks, 80% accurate.

September 1
A MGteam Member

Bill Z
I agree.
Doctors treat RNs differently. Some get offended, which is okay because I just do not see them again, others are indifferent and tell me I am "Only a Nurse", but the decent ones will engage me at my level of education.
It is just No doctor ever mentioned MG to me before and since it is rare I never thought about it. Studying up on it now.
This site seems to have a lot of accurate information.
LOVE the carton! God gave us a brain and will. It is up to me to listen to promptings and following up on them, then to study things out in my mind.

Anne

August 30
A MGteam Member

Hi Anne:
Terry and Tammy are right on their points to you. In my case, it took almost two years to diagnose MG and then it was discovered by mistake. They did three different blood tests and all came back confirming MG. It started as oMG but after a couple of months, it was determined to be gMG. Being rather a rare disease, apparently finding a neurologist with experience or the desire to study up on MG is difficult. I am content with my doctor, but you have to accept the fact that it will be your problem to study up and discuss various issues to help yourself. A cartoon I sent to this group a couple of weeks ago basically said that "GOD helps those who help themselves" and unfortunately that is what we have to do.
Cheers and Good Luck
Bill Z in Shelton, WA

August 28
A MGteam Member

MG mimics so many things that the diagnosis is difficult. It took the doctors two years to determine that I indeed have MG. Mine was even more difficult since I don’t have the typical antibodies they can find (an ER doctor explained to me that I probably do have antibodies that cause this, just not one that have pinpointed yet) I had to drive to another state to a specialist which did a single fiber test which then confirmed it was definitely MG.
I’m surprised the doctors allow you to take anything for your leg cramps. Any sore of muscle relaxer is not a suggested treatment, it could make MG worse. I still deal with cramps, not just leg cramps but muscle cramps where ever they feel like coming up. I’ve learned to use essential oils. Anything- even magnesium- the doctors said a definite NO.
Find a neurologist that specializes in MG, not all of them do. And keep asking questions. Learn as much as you can to take care of yourself.
Best wishes on this new path your life has taken.

August 28

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