Thanks for your response Ashley!

The neurologist wasn’t 100% that I have MG even though I tested positive for blocking antibodies. I took my patch off for him to look at my eye and at some point during that convo he said my eyelid went droopy and we should be proactive with seeing if steroids helped. He said if they helped I most likely have MG if they don’t then be still thinks it could be a cranial palsy.

Would an EMG test work if it’s only in my eyes? I guess I’m not sure what to do from here. It sounded like I would stay on prednisone for 2 weeks and then call him and let him know if things have changed.

Any suggestions let me know! I started getting eye pain in my good eye this past week, but it had subsided.

Thanks again!

Thank you for sharing so openly—it’s completely understandable to feel stuck in that space of uncertainty when doctors have differing opinions and the information feels unclear. 💜 The mixed results from antibody tests can definitely add to the confusion, as MG diagnosis can sometimes be tricky. While some people test positive for only one type of antibody, others don’t show antibodies at all but still have MG.

It’s great to hear that prednisone is helping with your double vision—that’s a positive step forward! Have your doctors mentioned any follow-up tests, like an EMG or another evaluation, to get more clarity? Sending you lots of strength and hoping you find some answers soon. 🌟💬