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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Sorry For Long Story. Just Trying To Find Answers. I See A Neurologist Due To A TBI Almost 5 Yrs Ago That Has Left Me With Daily Migraines

A MGteam Member asked a question 💭
Ocala, FL

She ordered bloodwork as a way to appease me as she isn't able to help with the migraines. When the results came back from the lab, it was accompanied by information about MG. The doctor explained that one marker came back negative , a second showed positive but a low number and the 3rd was so high she was unsure what it meant. She doesn't seem that concerned. After doing my own research, I discovered I actually have many symptoms of MG- such as double/blurry vision, muscle weakness in my legs… read more

October 22
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A MGteam Member

It sounds like you're going through a challenging time. Here are some steps you might consider based on my knowledge base:

1. Consult a Neuromuscular Specialist: Given your symptoms and test results, it might be beneficial to see a specialist who has more experience with myasthenia gravis (MG).

2. Ask Key Questions: When Show Full Answer

It sounds like you're going through a challenging time. Here are some steps you might consider based on my knowledge base:

1. Consult a Neuromuscular Specialist: Given your symptoms and test results, it might be beneficial to see a specialist who has more experience with myasthenia gravis (MG).

2. Ask Key Questions: When you meet with your specialist, consider asking:
- What side effects are possible with this treatment?
- Are the side effects of a medication worth the beneficial effects?
- What are the next steps for confirming an MG diagnosis?

3. Share Your Symptoms: Be open about all your symptoms, even those that seem minor. This can help your doctor get a complete picture of your health.

4. Seek Support: Connect with others who have MG through support networks like MGteam. Sharing experiences can provide valuable insights and emotional support.

5. Follow Up: Regular follow-ups with your healthcare provider are crucial to monitor your condition and adjust treatments as needed.

Remember, it's important to balance the benefits and risks of any treatment and to work closely with your healthcare team to find the best approach for you.

October 22

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