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I Have A Symptom That I Haven't Seen Addressed Here. I'm Having Trouble Looking Up For Any Length Of Time. Anyone Else Experience That?

A MGteam Member asked a question 💭
Clarkdale, AZ
September 21
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A MGteam Member

Yes, difficulty looking up for any length of time can be related to ocular myasthenia gravis. This condition causes muscle weakness, including the muscles that control eye movements. Here are some common eye and vision symptoms associated with ocular myasthenia gravis:

- Drooping Eyelids (Ptosis): Eyelids may fall, making Show Full Answer

Yes, difficulty looking up for any length of time can be related to ocular myasthenia gravis. This condition causes muscle weakness, including the muscles that control eye movements. Here are some common eye and vision symptoms associated with ocular myasthenia gravis:

- Drooping Eyelids (Ptosis): Eyelids may fall, making it look like your eyes aren’t fully open.
- Double Vision (Diplopia): Seeing two images instead of one due to misaligned eye movements.
- Blurred Vision: Trouble focusing your eyes, making things appear less clear.
- Dry Eyes: Burning sensations, light sensitivity, and trouble wearing contact lenses.
- Bulging Eyes: Often related to thyroid issues like Graves’ disease.

If your symptoms persist or worsen, it's important to consult with your healthcare provider for a thorough evaluation and appropriate management.

September 21
A MGteam Member

Double vision. Only my right eye drooped. My neuro-ophthalmologist put me on prednisone. When I reached 50mg per day it all corrected. Eventually I weaned off and everything was fine for 3 months. Them it came back along with issues with my speech and weakness in my fingers. Hence the change in diagnosis and referral to a neurologist that treats gMG

September 23
A MGteam Member

Thank you so much for your comment, Roy. What issues did you have while looking up in a fixed gaze? Did your eyes burn and smart and / or tear up, or did you see double or were you just unable to hold your eyelids up? Just wondering. I'm really struggling with that and everyone I've talked to says that's one of the tests I'll have to complete for the neurologist.

September 22
A MGteam Member

Yes when mine was just Occular I had issues looking up and to the left. Since mine changed to General I am on a new treatment. Looking up is no longer an issue. When I look to the left I still have issues.

September 22

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