Connect with others who understand.

Sign up Log in
About MGteam
Powered By
Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Daughter Has Been Getting Her Infusions Every 3 Weeks Since December But Now She Says Her Veins Hurt, There Is Times Her Arm Muscles Get

A MGteam Member asked a question 💭
San Antonio, TX

Inflamed and you can see that it's like swollen is that normal? She won't see a neurologist till October so we go to a center to do the infusion and I ask the nurse there all she said ask her neurologist

August 12
•
View reactions
A MGteam Member

No she doesn't since in our area it's difficult to find pediatrician who deals with mg and the insurance is such a hassle I'm grateful for the fact she is taking them it does make a big difference for her

August 13
A MGteam Member

It is easier for an adult to rationalize the pain vs gain but for a 12 year old it would be scary and harder to accept. Do you have a GP who could intercede on your behalf to get a quicker neurologist appt? Too bad the medical professionals at the infusion center are not more sensitive to your daughters needs and could remedy the pain somewhat.

August 13
A MGteam Member

It sounds like your daughter might be experiencing some discomfort from her intravenous immunoglobulin (IVIG) infusions. Here are some points to consider based on the knowledge base:

- Side Effects: Common side effects of IVIG can include muscle or joint aches, which might explain her arm muscle pain
- Infusion Rate: read more

It sounds like your daughter might be experiencing some discomfort from her intravenous immunoglobulin (IVIG) infusions. Here are some points to consider based on the knowledge base:

- Side Effects: Common side effects of IVIG can include muscle or joint aches, which might explain her arm muscle pain.
- Infusion Rate: Sometimes, slowing down the infusion rate can help reduce side effects.
- Serious Side Effects: While rare, serious side effects can include blood clots and allergic reactions. If her symptoms persist or worsen, it's important to consult her healthcare provider.

For more detailed information, you can visit the resources provided in the knowledge base:
- [Intravenous Immunoglobulin (IVIG) — Myasthenia Gravis Foundation of America](https://myasthenia.org/MG-Education/Learn-More-...)
- [Patient Education: Intravenous Immune Globulin (IVIG) (Beyond the Basics) — Wolters Kluwer UpToDate](https://www.uptodate.com/contents/intravenous-i...)

If her symptoms are severe or concerning, please seek medical advice promptly.

 This AI-generated response comes from MGteam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Intravenous Immunoglobulin (IVIG) for Myasthenia Gravis | MGteam
7 Facts About Myasthenia Gravis You Should Know | MGteam
August 12

Related content

View All

My Daughter Has Not Seen A Neurologist Since May But Still In Doing Her Infusions Every 3 Weeks Is There Some Test She Needs To Be Done To

A MGteam Member asked a question 💭
San Antonio, TX

I'm Going To Be Starting Ivig. Does Anybody Have Any Experience With It?How Did It Work For You

A MGteam Member asked a question 💭
Holland, MI

Has Anyone Tried Vyvgart? I’m On Mestinon Which Seems To Be Longer Effective. My Neurologist Doesn’t Want To Change My Medication

A MGteam Member asked a question 💭
Kentucky
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in