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My Daughter Has Not Seen A Neurologist Since May But Still In Doing Her Infusions Every 3 Weeks Is There Some Test She Needs To Be Done To

A MGteam Member asked a question 💭
San Antonio, TX

Make sure her levels are good?

August 26
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A MGteam Member

She should be doing labs every 3 to 4 months maybe more due to her age. I would call neurologist and ask them when her next labs are due.

August 26
A MGteam Member

This would be a miracle if it does happen🙏

August 29
A MGteam Member

I think they know the issue (MG) they need to figure the right mix of meds to gain control of pain and reduce unpredictability. My neurolist says by the 2nd year it does level out and many times goes into remission.

August 29
A MGteam Member

Ty

August 26
A MGteam Member

It might be helpful to discuss with her neurologist about the following tests to monitor her myasthenia gravis:

- Blood tests: To check for abnormal antibodies targeting AChRs
- Repetitive nerve stimulation (RNS): To study how well nerves communicate with muscles.
- Electromyography (EMG): To measure how well the brain Show Full Answer

It might be helpful to discuss with her neurologist about the following tests to monitor her myasthenia gravis:

- Blood tests: To check for abnormal antibodies targeting AChRs.
- Repetitive nerve stimulation (RNS): To study how well nerves communicate with muscles.
- Electromyography (EMG): To measure how well the brain communicates with muscles.
- Imaging tests (CT scan or MRI): To check for any underlying issues.

These tests can help assess her current condition and adjust her treatment plan if necessary.

August 26

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