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Those That Have Had The Thymus Gland Removed And Had No Tumors Or Growths, Did You Go Into Remission? And If So, How Long Did It Take?

A MGteam Member asked a question đź’­
Fort Worth, TX
June 29
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A MGteam Member

Most people with myasthenia gravis see benefits from a thymectomy within a year, even if they don't have thymus gland problems like thymomas (tumors). The goals of thymectomy are to improve muscle weakness, reduce the amount of medication needed, and help achieve remission. However, the exact time to remission can vary from Show Full Answer

Most people with myasthenia gravis see benefits from a thymectomy within a year, even if they don't have thymus gland problems like thymomas (tumors). The goals of thymectomy are to improve muscle weakness, reduce the amount of medication needed, and help achieve remission. However, the exact time to remission can vary from person to person.

June 29
A MGteam Member

FYI I’m a nurse.. I had Multiple thymomas. I had a thymectomy. No cancer. That surgery KICKED MY ASS. It went into overdrive. The docs said “when we take out your thymus, it pisses it off and floods your system with antibodies”. It took me 2 YEARS to stabilize with a multitude of steroids and cellcept and Plasmapharesis and IVIG and spent a crap ton of time in the hospital. I can now walk with no cane or walker. I mean I’m 57! I went to the gym as soon as I was able. I gained 150 pounds on prednisone. I was weak and destroyed. Hair fell out. Acne. BUT if you saw me now, you wouldn’t have any idea that happened to me.

Chin up! I hope it’s a better ride for you.

You will prevail!

July 9
A MGteam Member

My daughter had her's removed no tumors or anything last year Oct, since then she has not gone into remission, she has improved in alot of thinks since then but she takes pyrostigmia 4 times a day, has ivfg every 3 weeks, she still has double vision, not enough endurance for her age, chokes in her saliva very often and other symptoms still...

July 8

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