Since diagnosed with the disease and then doing research online, my Facebook feed has been flooded with articles and info. It has been overwhelming. And affected my mental health. Yes, I am living with this disease and making accommodations BUT having it bombarding me constantly with info and articles about the disease and people's experiences has created a "analysis paralysis" which had dominated my thought space and created a suppression of my other activities. MG has diminished my energy levels and I need to protect that limited resource from being pilfered from constant doomscrolling. It is ok to step away from the tsunami of info and take a break. If we let this disease become our only focus then it will overwhelm and we lose ourselves. I keep telling myself....I have MG but the person who I am is still here. My interests are still here. My passion is still here. All that makes me the person I was and am is still here. I just have to adapt. That is not "denial". It is taking what I know about this disease and building the necessary guardrails to protect who I am, weaving it as an experience that is part of me but not becoming only who I am. Be safe. Be well. Be hopeful. But most importantly, BE RESILIENT.

Seeing all the possible problems of overload with information today, perhaps I was lucky. When I was diagnosed some 40 years ago, there was one book about a lady that looked for 8 years to find a doctor that could tell her what her problem was. Some neurologists I saw made me think they paid for the license on the wall. A few did help me but mostly I had to figure out on my own what made me worse (I moved from a town near refineries to a desert city and left my battery wheelchair behind). I read about all the information, medications, etc. out there today and haven't a clue as to what the majority of it is.

Exactly

Some days I can’t handle the amount of info. So much is repetitive. Days such as that I just put it down and go onto something else. Another day I will come back to it.

Yes, some days I want to read and research and I have days I don’t even want to think about it.