Connect with others who understand.

Sign up Log in
Quick Links
Q&A Resources Treatments A-Z Help Center Guidelines Crisis Accessibility
About MGteam
What is This Site Terms of Use Privacy policy
Powered By
Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Cellcept For OMG, Anyone Have Any Experiences? Might Be My Next Option.

A MGteam Member asked a question 💭
Jersey Shore, PA
June 9
•
View reactions
A MGteam Member

I’ve been on 3000mg cellcept going on 4 years now. It took a long time to really kick in and the improvement of my symptoms was so slow that I didn’t realize it was helping. Then my doctor tried to lower my dose down to 2000mg/day and within 4 months, I was having trouble breathing at rest again. So now I’m back up to 3000 but I’m having to lower my prednisone from 15mg down to 12.5mg daily. That was rough but I made it. I’m weaker on this lower dose but I can handle it. I see my doctor again in September and I think he’ll try to get me down to 10 mg because of liver function. So, yes it works at least for me. It takes a while to kick in and you may not realize how much it’s helping. But your bloodwork has to be watched closely. It’s a balancing act trying to treat the MG without causing problems in other areas.

June 16
A MGteam Member

Make sure your doc keeps a close eye on your liver function tests. The combination of Cellcept and Prednisone blew mine sky high. I've had liver issues since.

June 15
A MGteam Member

I am on it now no side effects.

June 9
A MGteam Member

Mycophenolate mofetil, sold under the brand name CellCept, is an immunosuppressant used off-label to treat myasthenia gravis, including ocular myasthenia gravis (OMG). It works by limiting the number of white blood cells called lymphocytes, which produce the abnormal antibodies that cause myasthenia gravis. This helps Show Full Answer

Mycophenolate mofetil, sold under the brand name CellCept, is an immunosuppressant used off-label to treat myasthenia gravis, including ocular myasthenia gravis (OMG). It works by limiting the number of white blood cells called lymphocytes, which produce the abnormal antibodies that cause myasthenia gravis. This helps muscle tissue heal and strengthen.

Common side effects include:
- Nausea
- Gas
- Vomiting
- Trouble sleeping
- Constipation
- Muscle and joint pain
- Headache
- Tremors
- Tingling or burning sensations on the skin
- Swelling in the hands, arms, feet, and lower legs

Rare but serious side effects include:
- Severe stomach pain
- Trouble breathing
- Rashes and itching
- Chest pain
- Dizziness
- Fast heartbeat
- Unusual bleeding or bruising
- Blood in urine or feces
- Vomiting blood or a brown substance that looks like coffee grounds
- Fever
- Stiff joints
- Muscle pain

For more detailed information, you can visit the Myasthenia Gravis Foundation of America or MedlinePlus websites.

June 9

Related content

View All

Does Anyone Get Tremors? I'm Taking Cellcept 1 Tablets Twice A Day And 1,1/2 Tablets Of Mesition 4 Times A Day. I'm Better Then I Was .

A MGteam Member asked a question 💭
San Bernardino. Calif
July 1

Has Anyone Shifted From Cellcept To One Of The New Biologics? And, If So, What Was Your Experience.

A MGteam Member asked a question 💭
Cocoa, FL
November 9

Does Anyone Prescribed Pyridostigmine Have Trouble Getting It And If You Can Get It, Is It Horribly Expensive?

A MGteam Member asked a question 💭
Clarkdale, AZ
October 12
4 Facts About Ptosis (Droopy Eyelid) in Myasthenia Gravis: Pictures and Treatments
Under 40 With Myasthenia Gravis: 7 Challenges Younger Adults Face
7 Facts About Myasthenia Gravis You Should Know
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in