That is me now. I went many years in remission, now that my MG has surfaced, I'm finding that one day I'm strong as an ox and the next day I am paying for it

Oh yes. I did so much yesterday, and I had some energy so I kept going. I've had this disease for years and I should know better, but it just felt so good to get stuff done! Then I didn't get enough sleep last night nor a nap today. I'm weak a a kitten today. I hate MG!

It varies with me. Sometimes I can move mountains without symptoms for days. Other times symptoms arise within hours.

IVIG FOR 4 hours for 5 days in hospital. I didn’t see a great improvement, but I guess it did stabilize me for a few days. I’ve always had high pressure and in the hospital my pressure dropped 109/42, 98/44 and no one can give me an answer. I know these meds are new but I get frustrated hearing, well maybe this will work, we’re going to try another cycle, I guess I’m impatient and just want to feel like myself for a day or two. Going for cycle 2 in Vyvgart and hoping this gives me a boost I so need.

Yes, I have to adjust my schedule because of this.