Was On 20 MG Of Prednisone. I Trying To Get Off The Stuff Due To Side Effects. I Went Down To 15 5 Days Ago. Any Suggestions
That’s a good question for your Doctor for only they would know. I’m being weaned off but under supervision of a Neuromuscular Doctor
Cindy I was put on cyclosporine instead of prednisone as I am on another steroid (hydrocortisone) for Addison’s disease too. I haven’t seen much difference with MG symptoms. I have been on prednisone on and off my whole life due to asthma flares etc and watch your adrenal gland (cortisol) while tapering off prednisone. Hopefully they did very very slowly. Adrenal insufficiency symptoms can also mimick MG symptoms.
When I was on prednisone, I took it all after breakfast to help fight the insomnia that it caused. I also experienced digestive issues, leg, feet, and hand cramping with the pyridostigmine and only take a very small dose early in the day.
I get IVIG infusions of Gamaked every three weeks and it has helped my double vision and my constant falls. I used to fall several times a month and now it has been almost a year since I have fallen. My balance has much improved. I still have trouble with exhaustion and keeping my head up. I went to a pizza place by myself and I was really tired and I suddenly woke up with my head down and I was holding a fork with food on my cheek. Weakness and my voice gets real hoarse is another problem that has not improved. And I do not know what to do for my droopy eyelids and face.
Make sure u pay attention to ur body. I've been on it for ten years. I've been able to get it down to 10 mgs a day but when I go lower than that I can't chew. Just be careful
I’ve Asked Not To Take Steroids If Possible To Side Effects. Is This A Wise Choice Or Should I Think About Trying Steroids
Does The Effects Of Pyridortigmine Ever Wear Off
I See People On Here Taking Mestinon Multiple Times A Day. Are You Using This Because Your Mg Is Not Under Control? Are You On Any Thing Els