Mary, I hate that you’re experiencing this. Prednisone always prevents me from getting a good nights sleep. It’s so frustrating. I’ve been on the prednisone roller coaster for a few months. Currently I’m on 15 mg daily and it isn’t helping my symptoms. I take 60 mg of Mestinon 4 times a day. I’m still having severe double vision. I’ve contacted my doctor but haven’t gotten a reply. I can only hope I’m on the right track.
Unfortunately, I think this is a wait and see thing that is going to take time. I’ve heard that it can take years to come up with a good plan for treatment.
I sure hope you get some relief from your symptoms soon. It is definitely frustrating.

Good morning all. My left eye lid was closed for a year and a half before I was diagnosed with OMG. I was started on azathioprine and 5 mg prednisone and within 48 hours my eye lid popped open and has been for two years. Doctors said the prednisone was the cause of the improvement. The prednisone was gradually increased to 30 mg per day. After about 4 months my liver cried "foul" and all meds were stopped. But during the pred months I felt 30 years younger. The secret. I think, was small gradual increased doses of prednisone and constant monitoring. Of course, as I have gotten older and older, there is more and more I know less about. A little of something good can be better than a lot of it.
Cheers. Bill Z (age 79 now)

Good morning. Prednisone affects many people differently. However it does work but it takes time for your body to adjust. In the beginning for me it made me hyper, I had difficulty sleeping and it made me irritable. After about a month it got better. To date I have been on prednisone for almost a year at a dosage as high as 50 mg per day. Now I am on 10 mg and will be weaning off as my Imuran take hold and increases. Some of what I have learned. First always take it in the AM and with food. Second, take it one and a half to two hours after your mastenon. Prednisone will impact it. Third, nights that it was hard to fall asleep I took Melatonin to help me fall asleep. Check with your MD first before you start melatonin as it could impact other medications. Lastly, drink plenty of fluids and stay hydrated. That has been my experience. Good luck.

I don't want to be a "downer" but Prednisone was bad for me. I know everything is different for each of us so keep track of it and listen to your doctors and your body. My doctor and my body screamed NO!! I also had to take Cellcept at the time and it worked for me. I sure hope it helps you and soon!! Cindy

Thank you Christina. I will hang in there and hopefully this will pass and the Prednisone will start working. I am taking it early early in the morning, as I already had insomnia without the Prednisone. Thank you for the audio book recommendation.