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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Many Other People Are Dealing With Neuropathy Along With Their MG?

A MGteam Member asked a question 💭
Mechanicsburg, IL

it seems to be these days. I have a lot of tingling and numbness in my legs, ankles, and feet as well as my arms and hands. I was just wondering how many other people are dealing with the same issue and what you do to find relief

August 16
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A MGteam Member

I have made some posts earlier. I have tried gabipaten and pregabipaten and no help. I know the spelling is wrong. The I saw a post on here about topricin. I have used it and found some relief. My doctor advised only using it every other week so I do not build up immunity. On the off weeks I use a product called skinners and that helps some. There is no fix as we have a muscle disease and have to use relief where we find it.

September 25
A MGteam Member

Marie said Gabapentin, which is what I use. I use it for pain relief so I can sleep. I have pain from other sources rather than MG. I have most of my numbness in my left foot although I have some in my right foot as well and my fingers. I have just learned to live with it. Acupuncture and electrical stimulation did nothing for me.

August 18
A MGteam Member

Marie - I am the the Toprisin user, but am not struggling with the same things you are. I have found daily use ok with Toprisin and have not had build up yet. There ls Toprisin for feet and it too really helps me.

September 25
A MGteam Member

I suffer with neuropathy, and it is from the diabetes. So, I'm fighting 2 battles.

September 24
A MGteam Member

I have had peripheral neuropathy for about 5 yrs and tried gabapentin (didn’t work) but then I tried Lyrica (pregabalin) 225mg which my pharmacist husband says is a precursor to gabapentin and it works! I was on so many other things and tried so many therapies I was at wits end. My pain is burning pain in feet and legs up to my knees and hands ( but not as bad as feet and legs. They are also numb at times to but prefer the numbness by far than feeling like you are on fire.

August 19

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