Connect with others who understand.

Sign up Log in
Quick Links
Q&A Resources Treatments A-Z Help Center Guidelines Crisis Accessibility
About MGteam
What is This Site Terms of Use Privacy policy
Powered By
Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Are Some Of The Ways & Words You Use To Describe Your Vision And Eye Problems? I Have My Neuro Appt Tomorrow To Explain My Symptoms

A MGteam Member asked a question 💭
Dallas, TX

I've not had much luck explaining what I'm experiencing and thought maybe y'all could help me to describe to my Dr my Wonky eyes!

June 23
•
View reactions
A MGteam Member

Wonky is also a word I use to describe my vision. I have not had double vision. Mine is blurry with peripheral distortion that causes my balance to be affected. I also have depth perception issues which causes me to have problems determining if the ground is level, uphill, downhill, or a step. My eyelids feel heavy but not so much droopy. Hoping your doctor visit goes well!

June 24
A MGteam Member

When describing your vision and eye problems to your neurologist, you can use the following terms and descriptions based on the context provided:

1. Droopy Eyelids (Ptosis)
- "My eyelids feel heavy and droop, especially by the end of the day."
- "I have trouble keeping my eyes open."

2. Double Vision (Diplopia)
- Show Full Answer

When describing your vision and eye problems to your neurologist, you can use the following terms and descriptions based on the context provided:

1. Droopy Eyelids (Ptosis)
- "My eyelids feel heavy and droop, especially by the end of the day."
- "I have trouble keeping my eyes open."

2. Double Vision (Diplopia)
- "I see two images instead of one."
- "My eyes don't seem to align properly, causing double vision."
- "Resting my eyes sometimes helps improve the double vision."

3. Blurred Vision
- "Things appear less clear or sharp than usual."
- "My vision gets blurry, especially when I'm tired."
- "I have trouble focusing my eyes."

4. Dry Eyes
- "My eyes feel dry and gritty."
- "I experience burning sensations and light sensitivity."
- "It's difficult to wear contact lenses due to dryness."

5. Bulging Eyes (if applicable due to thyroid issues)
- "My eyes seem to bulge out more than usual."
- "I have a thyroid condition that might be affecting my eyes."

6. Other Symptoms
- "I sometimes get headaches, nausea, or dizziness due to my vision problems."
- "My eyelids twitch upward if I look down for a long time."

These descriptions can help your neurologist understand your symptoms better and provide appropriate treatment options.

June 23
A MGteam Member

I have had a very hard time explaining. Other than the double vision, one way I’ve tried to explain it is that print or words can appear smudged, like water was spilled On the paper.

July 2
A MGteam Member

I told my Dr I am tired of the double vision and looking like I've had a stroke. There has to be I something i can take or do. can take to help. She prescribed Pyridostigmine and it took a couple years to get the dosage. I still have double vision and droopy eye but only when I'm stressed. Hope this helped

June 26
A MGteam Member

I told my optho that it was like my optic nerve shut down and I couldn’t see. She thought I was nuts until my antibody test came back.

June 24

Related content

View All

What Are Some Of The Ways & Words You Use To Describe Your Vision And Eye Problems? I Have My Neuro Appt Tomorrow To Explain My Symptoms

A MGteam Member asked a question 💭
Dallas, TX
June 23

I Go To My Eye Doctor Tomorrow. What Are Some Important Things I Need To Ask Him About My Double Vision & MG?

A MGteam Member asked a question 💭
Charleston, SC
September 24

Besides Daily Blurry, With Occasional Double Vision, I Also Have Constant Eye Twitching/bouncing And Watery, Teary Eyes. Anyone Else?

A MGteam Member asked a question 💭
Dallas, TX
July 7
4 Facts About Ptosis (Droopy Eyelid) in Myasthenia Gravis: Pictures and Treatments
Myasthenia Gravis Smile: 4 Ways MG Affects the Face
Muscle Fatigue vs. Muscle Weakness With Myasthenia Gravis: Are They Different?
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in