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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Experience A Lot Of Pain? I've Been Told By My Doctors In The Past That MG Isn't Painful. Well, My Neck, Shoulders HURT.

A MGteam Member asked a question šŸ’­
Nancy, KY

My neck, back, shoulders, and arms hurt often. I have a lot of deterioration in those muscles and it is painful.

June 21
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A MGteam Member

I have discussed this with my doctor, but it isn't something that he is concerned with it seems. He just acknowledges that I have said I have pain and then moves on. It's quite frustrating but what do you do? My doctor at least, seems to believe pain is not a part of it. I also had a thymectomy with serious complications that resulted in lung failure and a 7 week coma. I still have a lot of pain in my chest and incision area. Is that normal?

July 10 (edited)
A MGteam Member

While myasthenia gravis (MG) primarily causes muscle weakness, it can indirectly lead to pain due to muscle fatigue and strain. Here are some points to consider:

- Muscle Weakness: MG causes muscle weakness, which can lead to overuse of other muscles, resulting in pain
- Neck and Shoulders: Pain in the neck and shoulders Show Full Answer

While myasthenia gravis (MG) primarily causes muscle weakness, it can indirectly lead to pain due to muscle fatigue and strain. Here are some points to consider:

- Muscle Weakness: MG causes muscle weakness, which can lead to overuse of other muscles, resulting in pain.
- Neck and Shoulders: Pain in the neck and shoulders can occur due to compensating for weak muscles.
- Consult Your Doctor: It's important to discuss these symptoms with your doctor to ensure you receive the best treatment and to rule out other potential causes.

Sharing your experience on platforms like MGteam can also provide support and insights from others with similar experiences.

June 21
A MGteam Member

Well... I mean you are right BillRaper. But you left out a few things too šŸ˜Š. Things like double lung failure, accidental damage(cuts/Knicks) to the diaphragm, mg crisis (obviously), chronic pain, muscle deterioration, drop foot, blood clots, cut arteries, damage or injury to any and all parts of.the upper body/torso, oxygen depletion, brain damage, PTSD, and death. Also familial conflict and drama, additional health issues, and financial ruin šŸ˜‰. Seriously though, every single thing I just mentioned are my personal experiences. It's a major surgery and should never be viewed as less than that. Though my experience was uncommon, I'm sure.

August 6
A MGteam Member

AI Overview

A thymectomy is a surgical procedure to remove the thymus gland. Possible complications of a thymectomy depend on the extent of the surgery and the patient's health before the operation. Some complications include:
Bleeding: Excessive bleeding can occur

Anesthesia: Problems from anesthesia, such as wheezing or sore throat, can occur
Infection: Infection at the incision site can occur

Lung problems: Serious lung problems, including pneumonia, can occur

Nerve damage: Damage to important nerves near the thymus can occur

Heart injury: Injury to the heart can occur

Blood vessel injury: Injury to a nearby blood vessel can occur

Collapsed lung: Pneumothorax, or collapsed lung, can occur

Blood between lungs and chest wall: Hemothorax, or blood between the lungs and chest wall, can occur

Lymphatic fluid between lungs and chest wall: Chylothorax, or lymphatic fluid between the lung and chest wall, can occur

Other complications include:
Increased risk of autoimmune disease
Increased risk of cancer
Increased risk of death
Thymoma recurrence
Diaphragm dysfunction
Atrial fibrillation
Air leak

Recovery time varies depending on whether the surgery was open or minimally invasive. Most people stay in the hospital for at least one night, and activity may be limited for at least a month or two. Patients should discuss the risks and benefits of surgery with their surgeon, especially if they are worried.

This is for informational purposes only. For medical advice or diagnosis, consult a professional. Generative AI is experimental.

July 11

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