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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Tried Vyvgart? I’m On Mestinon Which Seems To Be Longer Effective. My Neurologist Doesn’t Want To Change My Medication

A MGteam Member asked a question 💭
Kentucky
April 20
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A MGteam Member

I did Vyvgart and 2 weeks later had a crisis, trouble breathing, ended up hospitalized for months. Didn’t work for me but I know there are several it works great for. Currently trying Solaris with positive results thus far z

April 20
A MGteam Member

My understanding is that it does not work for seronegative patients like me.

April 20
A MGteam Member

My Urologist doesn't want to try any of the new mods. He says that since the Cellcept is working he doesn't want to change anything

April 20
A MGteam Member

I suggest if you haven’t. Find a MG Specialist for your care. Things changed for the better when I changed from just a neurologist to one who specializes with MG. I was able to tell more about MG to my neurologist. He just pushed more dosage which cause issues and numerous crisis. Now with one who just sees MG patients I am doing better. I found her at WVU Hospital. She keeps up with all the new research

April 24
A MGteam Member

I was on it for a year and it worked to relieve symptoms, but it stopped working. I am now on Solaris IV infusion which is working. Mestinon I still take with the IV infusion

April 23

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I Have MG But My Neurologist Also Thinks I Have “functional Neurological Disconnect.” Anyone Else Hearing This From Their Doctor Too?

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I’m Just Learning About The Various Symptoms Of MG And Was Wondering If Foot Sensitivity And Pain At Night Were Related To MG?

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Has Anyone Tried Taking Huperzine For MG.? Ive Read Its Suppose To Be Very Helpful But Would Love Some Feedback If You Have Tried It.

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