Oh, bless your heart. I’ve had a really bad flare up this weekend. The longest hospital stay due to a crisis for me was 5 days & we were out of town too. I can’t imagine 4 months.

They have not checked me for that as of yet as far as I know I don’t.

For the numbness in the legs, I highly recommend compression socks.🧦 This took away pain and numbness in my legs.

Oh forgot to add. I have been on Norco since October of 2022 as well for non MG related issues, while in the hospital for 4 months due to crisis and several other complications that came up during my stay so really still kind of messed up because they have had me on it for so long I am now addicted to it which stinks. Tried to take myself off and found out side effects from doing this are very bad.

Ok sound exactly like what I am going through. I have tremors and cramping on occasions and have backed my mestion down to 3 ml ( I am using liquid) it has helped a bit but still have them occasionally. I did start Solaris treatments on the 3rd which has improved my overall ability to function daily but still not 100% numbness and tingling are still present.