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MG And CPAP Machine

A MGteam Member asked a question šŸ’­
Detroit, MI

I was diagnosed w MG 8 weeks ago. I'm on my third 4 day visit in the hospital. One MG crisis bc of swallowing and breathing. I hv moderate sleep apnea but immediately after the MG was triggered 8 wks ago, I've been unable to use CPAP machine as the air forces itself into my mouth instead of lungs..I look like a chipmunk and it's ever so disruptive to my sleep. I'm not getting air at night and can't breathe. I was still waiting on my first IVIG when I went to hospital for MG crisis 8 days ago. Iā€¦ read more

March 24
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A MGteam Member

Hi Pat.
I had already been using cpap for 7 months before my MG diagnosis with no issues. It was only after MG symptoms set in that I now suffocate with it. As of Monday, waiting for new sleep study to adjust numbers. Hope it helps!
Hope you're doing well.
Lisa

April 4
A MGteam Member

I have used a cpap for many years and it did take a while to get used to it. Talk with your sleep Dr about ways to make it easier but do give it a chance. Most people take several weeks or sometimes even longer to be able to wear it all night comfortably. I guarantee that you will eventually love it. Several of our family and friends have been ready to give up but thankfully didn't. You will love it in time.

April 4
A MGteam Member

Thank you, Marc

March 31
A MGteam Member

I have not had any problem with Cpap when MG flared, sorry to hear you are having this issue

March 27
A MGteam Member

Never had sleep apnea at least I didn't think but I did have to sleep in a reclining chair sometimes to sleep when I had bad breathing problems before my thymectomy..šŸ™šŸæ

March 24

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