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How Long Can You Be On Mestiton?
There are plenty of options for treatment, Vyvgart, Soloris, Rituxan etc. do some research and tell you doc you want different treatments period, if they resist find another doctor.
Anyone Using Soliris ? How Is It Working?
I was on it for about 3 years very expensive I guess it kept it a bay I am now on Vgvart
Has Anyone Shifted From Cellcept To One Of The New Biologics? And, If So, What Was Your Experience.
I had acute onset of MG with serious exacerbations (on ventilator for a week) almost 4 years ago. After multiple rounds of plasma pheresis, steroids, etc., I was able to move to 2000 mg Cellcept daily as only meds and did quite well. Recently, however, I have noticed a return in fatigue and weakness and will be seeing my neurologist next week to consider altering medication. Thus my question about shift from Cellcept to one of the new biologics. Thank you.
Switching from Cellcept (mycophenolate mofetil) to a biologic medication for myasthenia gravis (MG) is a significant decision that should be made in consultation with your neurologist. Here are some… read more
Anyone Using Ultromiris. I Am On Soliris Every Two Weeks. Ultro Is Every 8. Are You Having Any Symptoms Returning Before The 8 Weeks Are Up
I am on ultro it has worked great Vyvgart did not work for me.
Are Legs Affected By Mg
Progressive weakness of my legs & hip & shoulder girdle as the day wears on, especially in the afternoon oad after light gardening or housework. My thighs have begun to feel weakness and tenderness… read more
My MG Neurologist Said That Patients Hit Their Worst Conditions After 2.5 Years Of Diagnosis/treatment.Does The General MG Population Agree?
Thanks StanleyAllen for your response. I will add you to my prayer list to help us learn more about MG and that we can together find more effective treatments.
For Those Of You On CellCept, How Long Did It Take Before You Noticed A Difference In Your Symptoms? Was There An Improvement Or No Change?
I've been on for over 3 years. My Dr started my off low 500mg 2 times a day. I started feeling the effect about 4 months, he then started increasing it 500mg every 4 months till I reached 2000. He… read more
Has Anyone Tried Vyvgart? I’m On Mestinon Which Seems To Be Longer Effective. My Neurologist Doesn’t Want To Change My Medication
A Friend Of Ours Is An MD And He Thinks We Should Have Our Soil Tested. Because Of. Our Many Auto Immune Diseases. I Have Colitis And Reynau
Prednisone Question? 15 Mg Per Day. Can I Do 10 In The Am And 5 In The Pm And Still Have The Same Effect
Been doing this for a few days now and have been feeling pretty good. Also on Solaris infusions every other week. Not sure if this counts as a 15mg does but seems to be working for me and I have been doing pretty good.
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