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Does Anyone Have Any Experience With Alcohol? I’m Seronegative & New To MG, Via Crisis Mode. Now, 6 Mo Later & On Rituximab I’m Symptom Free
I have a few drinks on the weekend if I go out, I think right now it’s better to try to blow off some stress than get panicked and send myself into a flare again. I try to be cautious and listen to… read more
Has Anyone Shifted From Cellcept To One Of The New Biologics? And, If So, What Was Your Experience.
I had acute onset of MG with serious exacerbations (on ventilator for a week) almost 4 years ago. After multiple rounds of plasma pheresis, steroids, etc., I was able to move to 2000 mg Cellcept daily as only meds and did quite well. Recently, however, I have noticed a return in fatigue and weakness and will be seeing my neurologist next week to consider altering medication. Thus my question about shift from Cellcept to one of the new biologics. Thank you.
Switching from Cellcept (mycophenolate mofetil) to a biologic medication for myasthenia gravis (MG) is a significant decision that should be made in consultation with your neurologist. Here are some… read more
Why Don't They Let People With Sero Neg Try New Meds? Why Don't We Ever Get Anything Good
A long time ago my dr let me try retuxamab and it made me so strong I could go up and down a flight of stairs. But then things changed and they took it away cause I'm sero neg. But it truly worked a miracle. So I don't g
et why they won't let us try
Any Experience With Rituximab That People Are Willing To Share Appreciated.
I had two rounds IV while in the hospital. The two days following each dosage, I felt rough, like I'd been run over by an 18-wheeler. Got better after that, and I've had no problems since.
Is It Common To Be A Bit Short Of Breath While Trying To Sleep?
gMG
My doctor recommended using my CPAP when I am taking a nap, or resting from fatigue.
I Am Suffering With Voice Stammering While Talking.Did Anyone Had The Same Issue?how To Resolve This Issue? IVIG Not Worked For Me.
Sounds good. I will check with my doctor. Thank you Linda.
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