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I've Heard A Lot About TCell Treatments. Sounds Promising. One Treatment. GOD Please Let This Be A New Cure. Hoping The Trials Go Smoothl
Keep us posted🙏🏿🙏🏿
Can GMG Effect The Heart Even After A Thymectomy And For Patients Not Checking Positive For Antibodies?
Atrial Fib occurred at time diagnosis, but was not diagnosed until years later. MG 2010, AF 2013, and currently CHF 2022.
So a lot of ppl have heart issues in addition to; however, sometimes when the lungs do not get enough air, the heart beats faster to try and compensate. That’s what I’ve been dealing with.
Any Experience With Zilbrysq? Not In Formulary Yet Here.
Cindy I am not sure. 🤔
What Does These Labs Mean? ACHr Binding Ab 0.03 Nmol/L AND ACHr Blocking Ab 18% With Thymoma
The lab results you provided indicate the following:
- AChR Binding Antibody (Ab) 0.03 nmol/L: This value is quite low. Typically, around 85% of people with myasthenia gravis have elevated levels of… read more
A Question For You All. My Neurologist Strongly Suggests That I Avoid Other People. Avoid Dining Out, Shopping, Church, And Other Places.
I assume the azathioprine is the reason, but what does your doctors tell you? Our immunity systems are seriously weakened so I see the reasoning, but... I'm not much of a hermit, but learning to be one.
You guys are in a tough situation for sure. I feel for you and the frustration. This is a tough disease with no real answers. What I have found that helps is to exercise moderately every other day. I… read more
Are There MG Specialists A Physician Who Specializes In MG?
A neurologist specialized in neuromuscular diseases would be a good choice for MG
Anyone In The Descartes 08 Study? If So What Type Side Effects Have You Noticed? I Just Had My First Treatment.
I feel stronger after my first treatment plus my face looks better. The muscles on the one side of my face are very week because I had Bell's Palsy before. It seemed to stop my face from dropping so much. The funny thing I've noticed is my pupils are very small since I had the treatment.
Eyes much more open, face more toned, eyes no longer bother by most light, feeling better than I have since 13 years ago.
I Need To Find A Doctor In KY That Specializes In MG.
I don’t go to a specialist but my neurologist is Dr. Schneider at Lexington Clinic and he has been great so far. I’ve only been diagnosed about 8 months and he’s helped so much and is such a great… read more
Gaslighing In The Neurological Community A Serious Issue. The Lack Of Updated Information And Knowledge Is Staggering!
I live in Cincinnati, Ohio and struggling with the gaslighing.
I've had about 14 neurologist and I participate in lots of zoom support groups online in Georgia and Wisconsin through the MG Holistic Society and I'm learning so much and working in being a MG… read more
Hello Group. How Many Young Children Do We Have That Are Suffering From MG? Johanna In Texas Has A 12 Year Old Daughter Recently Diagnosed.
I think that is a great way to share support! I hope I can find someone in the Detroit Michigan area that I can do this with.
