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I Showed No Symptoms Of MG @ Age72 Until I Got A Covid Vaccine And Then Got Covid Anyway. Is Anyone Tracking A Relationship Between The Two?

A MGteam Member asked a question 💭
Jackson, MS

Are there any vaccines I should avoid? I have been on Mycophenolate, 500mg 2x daily, Prednisone 5mg daily and Pyridostigmine 30mg 3x daily. Only I have pretty much stopped taking the Mycophenolate and only take Pyridostigmine 1x daily because I do not want to tone down my immune system too much in today's world. Will this hurt me in the long run? Right now I am doing fine. If I do anything that will require physical exertion I may use more of the Pyridostigmine. Is this stupid?

January 4
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A MGteam Member

That was a smart question Thomas and no dumb questions related to this disease and treatment.

Often they say don’t take live vaccines when dealing with immunosupressents like what you are on.

I can’t say any to avoid except as the article notes, but do take
Flu, pneumonia, shingles - good to haves. If you go on a monoclonal antibody treatment like ultomiris. You also need meningococcal vaccines (.both forms)!to protect from meningitis as well.

I am still learning but I understand the upcoming COVID might be recommended- I was told at one point.

Keep asking these questions, never a dumb question!!

6 days ago
A MGteam Member

I agree, don't change medications dosages without talking to your Doctor

January 5
A MGteam Member

Thanks. I will discuss it with my Doc. She is great and I like going to her. My wife likes her too.

January 4
A MGteam Member

Research has noted a very small number of cases where MG symptoms began after COVID-19 vaccination, but it’s unclear if the vaccine caused MG. COVID-19 vaccines are generally safe for people with MG, especially if symptoms are stable. Live vaccines should be avoided if you're on immunosuppressive therapy. Stopping or Show Full Answer

Research has noted a very small number of cases where MG symptoms began after COVID-19 vaccination, but it’s unclear if the vaccine caused MG. COVID-19 vaccines are generally safe for people with MG, especially if symptoms are stable. Live vaccines should be avoided if you're on immunosuppressive therapy. Stopping or reducing prescribed medications like Mycophenolate without consulting your doctor could risk long-term symptom control. Adjusting Pyridostigmine dosage for exertion may help temporarily, but it’s best to discuss this with your neurologist to ensure your treatment plan is optimized for your health and lifestyle.

January 4

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