Has Anyone Experienced Hot Flashes And Sudden Weakness? The First Time I’ve Experienced This I Had Been Very Physically Active But Once Not
My current treatment is 10 mg Prednisone and Mestinon 60 mg 4 times daily which usually controls symptoms.
Ed, thank you so so very much for letting me know how your treatment is going. I see my neurologist again in 5 weeks and will talk to him about IVIG treatments, Vyygard, etc. Thank you so much for your insight. Merry Christmas to you too.
One last thing Mary. It is great that they are able to subdue the symptoms with medication. Although there is no cure, there are Treatments that can reduce your symptoms to a point that it may be possible to get off of medications (Prednisone and Pyridostigmine) totally. The treatments, such as VYVGARD-HYTRULO may have some risks of their own to contend with. I just found a Neurologist (after 4 months of searching) that took me on as a patient. Right now I am in the middle of 5 IVIG Treatments. That is just to get me back on track. On December 26th., I get to meet with her, in her office and discuss further Treatments. My sites are set on VYVGARD, to see if it, or one of the other treatments like it will quell my symptoms and hopefully wean me off of the meds. Prednisone is not good for you to take for an extended period of time. Read up on Prednisone especially. Good luck with your treatments. I highly encourage you to seek advice from your Neurologist for treatments in place of medications. Merry Christmas.
Thank you for the advice on the Nutranize Houston. I am going to check into it!!
Have a beautiful evening!!
Hello Mary,
This regiment has been working well for me . I Have tried lower doses of Prednisone but had flare ups so I have stayed with this regiment. I have gained weight ,have mood swings and insomnia but I have found a vitamin supplement: Nutranize by Dr Megan on internet; it is somewhat expensive though but my wife seems to like my personality better while I’m taking these. I have learned to get plenty of rest also.
Thank you Ed for your response. I started the Prednisone today and will keep track of how it works for me. I pray it will help me. I hope you have a beautiful Thursday!!
Personal Question.......
I’ve Asked Not To Take Steroids If Possible To Side Effects. Is This A Wise Choice Or Should I Think About Trying Steroids
Was On 20 MG Of Prednisone. I Trying To Get Off The Stuff Due To Side Effects. I Went Down To 15 5 Days Ago. Any Suggestions