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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Your Myasthenia Gravis Symptoms Come And Go?

A MGteam Member asked a question 💭
Grantville, KS

I was wanting to ask each of you what your experience has been with your symptoms? I was wondering do you have symptoms daily? Hourly? Or, do the symptoms come and go depending on what your activity is. Is there a time when the symptoms have actually gone away for a while? I appreciate each of you sharing anything that can help, as we each try to live with Myasthenia Gravis in our lives. Thank you!

6 days ago
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A MGteam Member

And.... I agree with the rest, not enough rest and a busy schedule or to much stress causes flare ups with me also.

5 days ago
A MGteam Member

I have researched and found that travel can also bring on MG symptoms. I hope you are able to rest well Joellen.

6 days ago
A MGteam Member

I have a hard time getting enough sleep. If I do too much without rest my body brings me down quickly. I'll get fatigued and dizzy then I suffer for a day or two.

6 days ago
A MGteam Member

I have found that if I get 7 hrs of sleep a night I am usually in pretty good shape. Over the last two months I have only had symptoms after my flu and Covid vaccines. I do get more tired after going to the gym or if I don’t drink enough.

6 days ago
A MGteam Member

When I can keep a normal schedule, get enough rest, and not overdue I don't often get symptoms. However if I'm super busy and stressed out I definitely seem to get fatigued much easier. I have had two rounds of infusions and after the first I had symptoms reoccur halfway through my break. Now I just finished my second round and I'm waiting to see if symptoms reoccur after 2 to 3 weeks. My neurologist PA and I have a plan so I know what I can add or up if I feel even a twinge of the symptoms coming. Hopefully this will make me be able to have 4 weeks without any relapse.

6 days ago

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