I have MG and other conditions that have disabled me. Once my hands froze while holding my steering wheel on a turn. After one big double vision event, I knew I had to stop driving. Work wanted me driving in too much and work too long hours. I had to resign and apply for disability. It was hard to not drive but I didn’t want some double vision/blurry vision to result in an accident. It was too big a risk. Sometimes by end of day my legs would be so tired and getting to the right pedals was hard. Again, could cause an accident if I can’t brake hard/fast enough.

You have to be honest with yourself when to say I’m going to stop driving. You command a multi-ton vehicle when you drive. You don’t want to hurt somebody. That is my perspective. I wouldn’t be able to live with myself if I caused an accident.

I am sorry this disease is impacting your life and possibly work. Also talk to your doctors. Maybe once they know your vision issues they can think of medications or special glasses that include a prism to help you.

Good luck.

I can't speak to disability, but I had no trouble getting a disabled parking placard.

Ok, found the video. It’s from the 2019 MG Foundation of America Conference.

This kind woman was a law judge for 20-30 years who listened to social security disability claims in court. Her husband had MG so she is very familiar with the disorder, and he also was a law judge. She gave the talk as a volunteer to our community.

The video walks you through step by step on what to do and not do, from a judge perspective, when applying for disability with MG. No promises for a result of course! I bookmarked this in my brain when I saw it years ago because you just never know what’s next with MG!

And, RichardPope, I hope this will be helpful to you, if you need it down the line.

Here is a screenshot of the video to look for on YouTube, and the link.

https://youtu.be/qhaOtD9FudA?si=DizVl31fWTHAEOom

Hi RichardPope. There is a video on YouTube posted a year or so back, about MG and trying to get on disability or a similar struggle. I think it is a talk given by a woman whose husband had/has MG, and she herself worked in a role where she was in the department that managed applications coming in for disability. This might be the MG of America conference video series? If I find the video later, I will post the link. (Am I allowed to do that? If not, and I find it later and post, just delete for me MG Team, thanks.) It’s very informative. The main point that stuck with me is this: she said that she has never seen a person approved for just having MG. I think many of us here could probably say: MG isn’t enough?! I think we unfortunately aren’t alone as it seems they don’t make it easy for anyone to get disability, even after we pay into the system. She went on to explain that if they did get on to disability, it was approved with the person having more than just MG. I suppose we could all list the other issues we have because of MG….?!

I’ll look for the video later if I get a chance.