Connect with others who understand.

Sign up Log in
About MGteam
Powered By
Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone With Generalized MG Had Stiffness In Your Lower Legs? New Neurologist Is Questioning The MG Diagnosis Due To Muscle Stiffnes

A MGteam Member asked a question 💭
Vanceburg, KY
August 29
View reactions
A MGteam Member

Yes, at the end of the day trying to get out of a chair is almost impossible. My legs feel so weak and my knees really ache.

August 31
A MGteam Member

It took a while for me to get diagnosed, but my Neurologist finally had me get bloodwork done and they froze the sample, which finally resulted in me being diagnosed with MG. That was in 2009. I was immediately put on Prednisone and Mestenon. I have been in remission since 2009, gone through Covid and several times in the hospital and remained in remission.
Good luck

August 31
A MGteam Member

Very stiff. For sure diagnosed LRP4 - Seems worse on right side. Most of the time it is both legs are stiff, but right left. . Hope information helps I was diagnosed in June 2024

September 1
A MGteam Member

I have only seen my Neurologist once seamed like a good doctor specializes in MG , but every time I call with a update to my medicine ( I just was prescribed it in March ) the office nurse ask me if I need a different medicine , I told her I'm not a doctor how should I know , just give him the message and let him decide or I'll see him in October at my next appointment. Like I don't have enough on my plate.

September 1
A MGteam Member

So am I Jim . . . Honestly considering getting a referral to a different Neuro if he continues to question 🤷🏻‍♀️ but I’m not a doctor and it’s hard to decide what to do - he comes highly recommended and manages several mg cases

September 1

Related content

View All

Does General Myasthenia Gravis Also Affect Your Eyes I.e. Droopy Eyelids And Double Vision Or Do You Have To Be Diagnosed With Both?

A MGteam Member asked a question 💭
Severn, MD

Has Anyone Experienced Issues With Stiff Neck And .pain . Problem Moving Your Head To The Right And Left

A MGteam Member asked a question 💭
Greenville, PA

I Have MG But My Neurologist Also Thinks I Have “functional Neurological Disconnect.” Anyone Else Hearing This From Their Doctor Too?

A MGteam Member asked a question 💭
Kentucky
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in