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Has Anyone With Generalized MG Had Stiffness In Your Lower Legs? New Neurologist Is Questioning The MG Diagnosis Due To Muscle Stiffnes

A MGteam Member asked a question 💭
Vanceburg, KY
August 29
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A MGteam Member

Yes, at the end of the day trying to get out of a chair is almost impossible. My legs feel so weak and my knees really ache.

August 31
A MGteam Member

It took a while for me to get diagnosed, but my Neurologist finally had me get bloodwork done and they froze the sample, which finally resulted in me being diagnosed with MG. That was in 2009. I was immediately put on Prednisone and Mestenon. I have been in remission since 2009, gone through Covid and several times in the hospital and remained in remission.
Good luck

August 31
A MGteam Member

Very stiff. For sure diagnosed LRP4 - Seems worse on right side. Most of the time it is both legs are stiff, but right left. . Hope information helps I was diagnosed in June 2024

September 1
A MGteam Member

I have only seen my Neurologist once seamed like a good doctor specializes in MG , but every time I call with a update to my medicine ( I just was prescribed it in March ) the office nurse ask me if I need a different medicine , I told her I'm not a doctor how should I know , just give him the message and let him decide or I'll see him in October at my next appointment. Like I don't have enough on my plate.

September 1
A MGteam Member

So am I Jim . . . Honestly considering getting a referral to a different Neuro if he continues to question 🤷🏻‍♀️ but I’m not a doctor and it’s hard to decide what to do - he comes highly recommended and manages several mg cases

September 1

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