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Which Myasthenia Gravis Symptom Surprised You The Most?

A MGteam Member asked a question 💭
San Francisco, CA
August 19, 2024
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A MGteam Member

It never dawned on me that incontinence could be an issue- but then it is muscle related. Bad days I need to "go" on a regular basis or as soon as my body says so ..go and not wait for the second suggestion.

August 22, 2024
A MGteam Member

Severe fatigue and breathing issues. But really I don't like MG at all. My Dr asked me how do I feel I said I'm pissed at this disease. It's taken me away from watching my grandson play baseball this summer due to the heat. I can't do all the things I loved to do. He said so your depressed? I said would you be depressed if you had this? I'm tired of taking tons of meds. I'm tired of being tired.

August 19, 2024
A MGteam Member

I was surprised by the intense muscle fatigue and the excruciating leg cramps.

August 21, 2024
A MGteam Member

Fatigue. I feel so weak. My muscles have melted away. Can't stand up for very long.

August 19, 2024
A MGteam Member

For me it was shortness of breath leading to a crisis a few weeks ago.

August 19, 2024

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