I am tired of everyone getting the new drugs and getting better and I am stuck with 50 year old medications that were used for transplants and lymphoma but repurposed for MG but is killing my body in the process

I’m also seronegative. I have a very positive SFEMG with blocking so there’s no question about my diagnosis. I’m also stuck with cellcept, prednisone and IVIG. Mestinon works for me but causes muscle spasms that are intolerable. It gets really old not being eligible for the newer drugs.

Absolutely! Being seronegative is a bummer because they don’t let you try anything.

I’m also seronegative. And to make things worse, I can’t take mestinon. It works for me but I get severe muscle spasms from it. I’ve also gained about 50#s from prednisone. I’ve also developed diabetes from it. I’m now down to 12.5mg prednisone per day. But it’s not enough. I’m also on IVIG every 28days and 3000mg cellcept per day. I am just existing. I can’t do anything and it gets really, really old to live like this. I, too, need a power wheelchair to go around outside my home. We all need more options to at least try to find some relief. I would love to just walk out in my yard. I would love to be able to just fold our laundry, to do simple things that have been taken away from me. I think this disease test all of us in many ways. And any chance of trying the newer treatments are withheld from us. That’s adds to our frustration.

For me, the combination of the generic mestinon, prednisone, and once a month iViG has worked beautifully. Double vision is virtually cleared and feeling much better.