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Tired

A MGteam Member asked a question 💭
Philadelphia Area, PA
May 18
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A MGteam Member

Yes, for years I’ve gone from one specialist to another with the main complaint of being totally fatigue, I tell the doctors , I’m not just tired, a woman can be tired and still go on, this is just total fatigue where I have to lay down. It took five years back-and-forth when the ophthalmologist finally found it because my eyes were the last thing to really bother me. Im in my late 70s so my children, who are all 50 and over ask me what do you do to get this tired? I really can’t give them an answer, I just feel total fatigue and weak.
Don’t fight the fatigue, lay down and I put cold compresses on my eyes and it helps me .

May 31
A MGteam Member

I have been on 90mg every 4 hours starting at 7am to 7pm after being diagnosed. I was not on enough medication, so I finally hit a great neuro . I me take cellceop, I was on 60mg of prednisone but winging down 5 mg every 6 weeks, currently at 45mg . And I do IVIG every 2months , 5 days . I am about 90% pre MG. I am trying to get off Mestinon cut back to 60mg. My Neuro is ok with it as long as I am doing good. I am 67 so I hope I can continue doing good. I still get fatigue & rest . But I have come a long way. Prayers you feel better 🙏🏻

May 19
A MGteam Member

Beyond tired! Exhausted. How do you function?

May 18

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