I drink caffeine free diet pepsi or I get very shaky. Only since I started Prednisone.

Caffeine doesn't bother me but I've lost the taste for sodas.l They taste like I licked a battery. Because of that I lost 35lbs. I count that as a win! for some reason it effects my appetite. And I stopped taking the steroids and Mestinon. I just could not function on the drugs.

I drink coffee on a regular basis ( 1/2 regular and 1/2 decaf ) and I have no issues.

The only time I have issues with caffeine is from "coffee" - but not every time. Mysterious. I usually have a daily Coke Zero. The caffeine in that drink doesn't affect me.

I drink less caffeine than before the diagnosis but it doesn’t seem to bother me