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I've Had MG For Over 5 Years. I Was Taking A Beta Blocker. That's A No No For Most People With MG. My Eyes Are A Mess. Any Suggestions?

A MGteam Member asked a question 💭
San Bernardino. Calif
February 16
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A MGteam Member

I have prisms in my eyeglasses which helps my double vision greatly.

February 18
A MGteam Member

Do you have any neuro opthamologists near you? They would be most familiar with impact of MG on eyes. The problem is this is a rare disease. Docs may not see this illness much in their practice. You might need to ask if you specialist has had experience. Neurology and Rheumatology would be typical specialists.

March 3
A MGteam Member

My eye doctor put me on areds (eye vitamins). I have noticed an improvement most of the time in the blurriness, except when I am exhausted. I've only been diagnosed for 15 months. I haven't heard back from my neurologist re: areds.

February 18
A MGteam Member

I also am having issues with my eyes. Mestinon, prednisone, and IVIG have not helped this particular problem. Wish I could have been more helpful and hope you get some relief. It's awful.

February 17
A MGteam Member

I'll be asking fir a referral tomorrow.

March 3

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