I have devoured good medical advice from Mayo Clinic, Cleveland Clinic and a couple of other sites. And blogs have helped me implement these things. I need to be able to apply what I learn to my daily life. Have a great day all!

I am lucky to finally have found the neurologist I have now. She is very well informed about MG. She also keeps me informed. A lot of doctors don’t know about the disease. The doctors try to order medication MG patients can not take. I have become my on advocate. My neurologist also signed me up for physical therapy which has helped a lot.

I just watched an online webinar with neurologist and long time mg patients. They reported that in their opinion it’s most important in ones treatment for mg to have a good neurologist that can be trust Ed, and also one that is a neuromuscular specialist. My neurologist seems detached and is doing little for me. My PCP does more to help me understand my condition and other autoimmune diseases that can appear when you already have one. He has prescribed physical therapy which is a great help. I’m about to seek out a neuromuscular specialist.

I have learned to self advocate as well, out of necessity. Have a blessed day!

I grow up believing that doctors know everything. However, during my life I’ve learned that doctors are people like the rest of us.

I’ve learned to question doctors and deciding to move on or to say with this person.