What Are Your Top Tips For Dealing With Myasthenia Gravis In The Heat?
Turn the water heater temp down so that your showers are a bit cooler. I find that a shower with hotter water can trigger all sorts of problems, i.e. shortness of breath, immediate fatigue, and increased heart rate as well as feeling very lightheaded. Not sure this has anything to do with MG, but the cooler water temperature seems to help me. π
A lot depends on where you live. If it's a dry climate as it was where I lived when diagnosed, I went outside for a very limited time and slowly increased the time. My boys were both in college and I had things I needed to do myself, not being able to hire it done. It took a number of months but I could then handle far more time outside. If it's humid, that's not a viable answer - wear a neck fan, limit the time outside doing chores to a small time, come in cool off and rest, go back outside for a shorter amount of time. Others have had great ideas on how they handle it. It's just very frustrating to have summer come and be stuck in the house.
I have fans and air conditioner running all summer/spring. Cool showers help. When on the go, battery operated fan that also sprays is nice and a cooling scarf or two. Light loose fitting clothes, sunglasses and a hat. Yes also lots of water!
My husband has recently been diagnosed with asthma and the air quality and humidity affect him as well as me, so we have closed up the house and have relied on air conditioning to keep it cool and humidity under control. I was always a sun-lover, but I have changed my ways as the bright sunshine hurts my eyes, the heat and humidity fatigue me quickly. I have added several containers of flowers to my deck where I can easily navigate short visits to deadhead flowers and allow their beauty to speak to me. We added a screened-in gazzabo on our deck to enjoy a bug-free, shady spot for a few more hours each day. I wear loose fitting, airy clothes.
Air conditioning, auto start car(good air) thinking of getting home generator (I am trying to get Medicare help) use Cpap also. Really need to move north but cold is just as bad on meπ±π±π±
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